Turns out that "practicing medicine" is just about as real as a phrase can get! Do doctors ever really provide a black and white answer or is just a lot of grey guesses that lead us into the next chapter of our rather confusing existence?
Today I thought I might share an update into the Medical Mystery Saga. It seems as though the latest answers in a list of many have turned out to be little more than further guesses which have left us with more questions. Since I can't seem to find many of my own answers, I have decided that the only productive thing to do at this point is to see if there is anything that I can do to help aid my fellow medical mysteries out there. So, I am starting a little campaign to spread awareness and help others get the help they are desperate to find, even if answers are not possible at this time. I hope that you will all join me and help our community of chronic illness warriors!
Please share any ideas that you have about what we can offer each other in the way of help. Whether it be better resources so that we can keep being our own patient advocates, an app design to help us better track miscellaneous symptoms to bring up with doctors, or another avenue of aid... Daily life with a chronic illness is the pits, but suffering with something that you can't seem to find a proper diagnosis for, and therefore can't find effective treatment for, can tumult your life into chaos and rip your relationships into shreds!
I don't know about you, but I am tired of reading reports of fellow chronic illness warriors giving up. I have been there, believe me! A couple of years ago I was flat ashamed because I felt so hopeless that I was utterly depressed. In fact, it got so bad at one point that I considered suicide because I just couldn't handle it anymore. I was tired of fighting and tired of meds that made me into a completely different person. I just wanted to stop hurting and be at peace.
Luckily for me, I was blessed to have an incredible support system at the time that kept me from doing anything that I couldn't come back from. Thank God, my parents, family, and friends were there for me every step of the way and kept at it until we found some light at the end of the tunnel. I got off the meds that were only exacerbating my mood swings, found some peace in my life returning to the symptom free months, and even fell in love with the most remarkable man who I have ever met.
Life turned around for me at the perfect time. However, I lived through it literally only because I was lucky enough to have the right support system at the most crucial time. But unfortunately, that is not how it works for everyone. Suicide helplines aren't always helpful and some people are forced to go through all of these things with little to no help. People commit suicide because they are just plain exhausted! What kind of reason is that when we are living in the age of connection? Information is said to be right at our fingertips. We can readily make new friends across the globe. So why not connect in a way that helps the people who are hurting?
Please leave comments below to let me know what you think about this new campaign. I know there is a lot of risk in opening ourselves up to ridicule and criticism from strangers. It can be terrifying to admit that we are at our wits end. But help is out there and sometimes we just have to look a little harder for the hope that is staring straight at us!
Prayers for my fellow warriors,